Molly Margaret's Miracle

Hey friends! We haven’t done the best job of updating here but wanted to pop in and let you know what’s going on because we have a pretty big week.

Today we had Molly Margaret’s monthly OMS treatment. It was rough. As far as the infusions, everything went as planned and for that we’re so thankful! But Molly Margaret is so much more aware and knows she wants nothing to do with anything in that building. She was inconsolable most of the time we were there which was so hard for us. It breaks our hearts to see her so upset and not herself. The longer we are away from the hospital, the harder the going back is it seems. Don’t get us wrong, we’re so thankful for bigger breaks in between but man, it is so hard to watch her be so upset and not be able to change it or explain what’s going on to her and why we have to do this. Lots of tears shed today. But, we made it. All of our doctors came by at some point and everyone feels like she’s doing well! We’re continuing to wean steroids each month and praying with each wean that we don’t see any regression in her OMS.

Tomorrow we go back to have dye injected for our first round of post cancer treatment scans, which will be on Wednesday. She has to take iodine drops in preparation and historically that has been a struggle. A seemingly insignificant thing that becomes a huge ordeal for us. We’d love prayers that we’re able to easily get those in and that there is minimal trauma for Molly Margaret having the dye injected. Anyone getting near her at all at the hospital is a trigger right now so praying for a quick, smooth injection!

Wednesday we will be up bright and early for scans. She will be sedated for these. The ideal outcome here is that nothing has changed or looks suspicious, causing any type of concern and need for further investigation. Prayers for a smooth sedation – for no delays since we have to withhold food and drink from her beforehand. If you’re able, we’d love for you to join us in wearing your believe shirt on Wednesday! Send us a pic or tag us in one if you do… it’s always comforting to see our army out there when we’re walking into hard days at the hospital. 🤍

Specific requests:

• For peace over Molly Margaret each time we enter the hospital. That the Lord would flood her little body with a peace that can only come from Him as she experiences feelings that make her anxious in that building.
• That the Lord would provide Neal and I strength for each day. That He would be our comfort when we don’t want to keep walking this road.
• That the scans this week would not cause any concern and would continue to show no change.
• That as we wean from steroids there would be no change or relapse in Molly Margaret’s OMS.

We’re so thankful for each of you and your steadfast prayers! We don’t share the hard parts of this for sympathy but rather so you can understand more deeply what this journey looks like – all of it. We believe that God honors our specific prayers and that the prayers of those in the body of Christ are so powerful. But how can we ask you to pray specifically if we don’t share it all with you? The good, the bad and the ugly. Today we are just thankful for the night. For the strength and endurance the Lord provided for today. For the time we got to play together and laugh when we got home from a hard day. That tomorrow His mercies are new. What a gift. 

You are loved, friends! By us and by your Creator. We pray that you know and feel that deeply as you rest tonight. ❤️